Harry Crowther and his parents’ journey was a long one….to get to the answers they desperately needed.
Nursing student Sadie Jones struggled to find out what was wrong….despite being told that it was all in her head.
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premature aging
Sharron and John Crowther feel in love at an early age and set to creating a beautiful life together in the UK. Once they had their first child, they couldn’t wait to keep adding to their family. Nine years after they married, they gave birth to the 3rd son, Harry. A fantastic child, both Sharron and John never would have suspected what was to come. Here are a list of some of his personal symptoms and a brief version of the path Harry took to get a final diagnosis.
Some of the symptoms he showed over time:
- Around the age of 1, Sharron noticed what she believed to be tiny freckles under his arm. , but they were spread out and a pale-brown in color. With an ultraviolet light, the dermatologist was able to detect another spot the size of about half an apple on his stomach. They were referred to a geneticist.
- The geneticist thought it was Type 1 Neurofibromatosis which may cause tumors in the body as the child grows. A blood test was given to confirm. A few weeks later, they went to see the geneticist who told them the test was negative. [read more…]
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